Thursday, January 17, 2013
Admitting I have EDS
Up until last Saturday night, I had not told any of my friends about being diagnosed with EDS hypermobility type. It's not like EDS is a terminal illness, but it is something that I need to learn how to cope with. I finally realized the next step for me needs to be to admit that I have a medical condition that I suffer from. I feel the affects EDS has on my body everyday. That doesn't mean I plan to let it consume my life and worry about it all the time. I have always had EDS. I just need to figure out how to cope/deal with the symptoms. For now, dealing with it means I need to let those close to me know that I have been diagnosed and that I will most likely continue to have weird ailments through my life.
I told my best friend, Evie, last Saturday night. For some reason I just needed to get it out in the open. I've been working so hard at pretending like I am fine and have been lying about why I've had the big "chain reaction" ever since my hip started to hurt. I mainly didn't want anyone to worry about me. I still need to tell my other best friends...I pretty much use any excuse for a girls night, so I might just have to have one at my place sometime soon.
Evie listened to what I had to say and brought up a couple of things I had forgotten about from when I was a teenager. Mainly, that I was at one point double jointed in my shoulders and reminded me of how hard my recovery was for the pilon fracture I suffered during a car accident when I was 15. I broke my tibia & medial ankle and there was a ton of shattering. I was told I would never be able to play high impact sports again because of the way it broke....I would be more susceptible to re-fracturing. I had constant pain and swelling for years after the surgery. I have always blamed my aches and pain on the car accident....never really letting myself think any further into why I always seemed to hurt in various joints/parts of my body. Deep down I have always known that there was something more going on. Most teenagers don't have to go to the doctor every other week/each month to get evaluated...Blood pressure readings in various positions, blood work, prescription changes all trying to stabilize my autonomic dysfunction which I believe they considered to be autonomic failure at one point. I got diagnosed with so many medical conditions starting when I was 12, it really is crazy to think that it took this long to get diagnosed.
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